Tag: Field notes

🌿 Field Note: When I Stopped Explaining

We were about three miles from home when the tire went flat.

I had just picked my wife up from work, and we were heading back after what was supposed to be a mild snowstorm. The forecast said two to four inches. Minnesota, apparently, had other plans. By the time we were driving home, we were sitting closer to eight or ten.

I pulled over on the side of a country road while my wife hopped out to check the damage. Two puncture holes. Not exactly something you can wish away.

First call was to our neighbor. He wasn’t home — out plowing snow and booked solid for a couple more hours. Fair enough. My wife checked for the spare but looked in the wrong spot, so at that point we thought we didn’t have one. AAA said a tow truck could get to us in about two hours. They were busy pulling people out of ditches.

And that’s when the practical reality hit me.

If the car got towed… I was going to have to climb up into the truck cab.

And I couldn’t.

So I called my neighbor back and explained the situation. Told him it might be a few hours. And then — the part that stuck in my throat for a second — I said plainly that I wouldn’t be able to get into the tow truck because I’m disabled.

He paused.

Then said quietly ā€œoh.ā€

And honestly? That made sense. This is someone I grew up with. Someone who has seen me in my pajamas more times than I can count on my fingers. šŸ˜‚ For nearly twenty years, I’ve always had some kind of explanation ready when my crutches came up — something temporary-sounding, something easier than the full truth.

Old habits run deep.

He offered to have his son come get us. I told him I wanted to check what AAA could do first and that I’d keep him posted.

After that, there wasn’t much to do but wait.

So we did what you do when you’re stranded on a snowy roadside in Minnesota — we settled in and started working through the leftover Valentine’s chocolate like it was part of the emergency plan.

A woman pulled over and asked if we needed help. We thanked her and told her we were okay. Not long after, another man stopped and offered us a ride somewhere warm. We declined again, grateful but managing.

Then about fifteen minutes later, another SUV pulled up.

Turns out his wife was the one who had offered us snacks — and she had apparently sent him back on a mission. šŸ˜‚

He found the spare tire (in the correct spot, bless him) and had it swapped out in no time. I offered to pay him. He refused. My wife handed him some car wash books we had in the car, and after a polite back-and-forth, he finally accepted.

He even followed us for a couple of miles just to make sure we made it safely down the road.

By the time we got home — truly home — something in my chest had shifted.

Not because the moment itself was easy. It wasn’t. Old voices were loud for a minute there — the ones that say don’t look weak, don’t show it, don’t let people see where it hurts.

But sitting there in the quiet afterward, I realized something I hadn’t expected.

For the first time in almost twenty years…I wasn’t trying to keep track of the story anymore.

And it turns out, that weighs a lot less.

Field Notes: The Math Ain’t Mathing

Why the numbers never add up — and honestly, I’d like to speak to management.

There is regular math……and then there is chronic illness math.

They are not the same.

Not even a little bit.

Because according to normal human math:

Eight hours of sleep should equal feeling rested.

One small errand should equal a normal functioning day.

A quiet weekend should equal restored energy.

And yet.

My body routinely looks at these perfectly reasonable equations and says:

“Absolutely not.”

āž• The Math That Never Maths

Chronic illness math looks more like this:

8 hours of sleep = still tired

One appointment = full system reboot required

ā€œI feel pretty good todayā€ = mysterious consequences tomorrow

Cold weather = muscles immediately filing formal complaints

It’s less of a calculator situation…

…and more of a weather prediction crossed with interpretive dance.

Because as Annie Elise so perfectly puts it —the math ain’t mathing. 🤣

At this point I would just like someone — anyone — to explain it to me like I’m five.

🐶 Bingo Energy, Muffin Spirit (Revisited)

Spiritually, I am still very much:

✨ Bingo energy

šŸ”„ Muffin spirit

Which means on the outside I am trying to be gentle and reasonable……but internally, when my body does something chaotic, there is a small Muffin voice going:

ā€œEXCUSE ME???ā€

Especially when I’m tired.

Or cold.

Or — and this is very important —hungry.

šŸ„„ Learning the New Math

The longer I live in this body, the more I’m learning:

This isn’t broken math.

It’s just… different math.

It’s a system where:

rest counts more than pushing

small wins count more than big plans

and listening to my body is more accurate than any calendar I’ve ever owned

Some days I still get frustrated.

Okay — many days.

But I’m slowly learning that working with my body instead of arguing with it tends to go… significantly better.

(Results may vary. Muffin still makes occasional appearances. Especially if I’m hangry)

🌱 Gentle Reminder

If your body’s math doesn’t make sense either…You are not doing it wrong.

You are not lazy.

You are not imagining things.

You are just living in a body that plays by different rules.

And honestly?

We’re doing pretty amazing considering the circumstances.

šŸ’› Softly chaotic. Medically complicated. Still standing.

Phrase ā€œthe math ain’t mathingā€ lovingly borrowed from Annie Elise because… honestly… accurate.

Coming Back Gently

I’m back — quietly, without fanfare.

The holidays asked for more rest than words, and I listened. Some seasons are for making, and some are for holding things together softly. This one was the latter.

Lately, I’ve been noticing the small things again: winter light through bare trees, the comfort of warmth after the cold, the way stillness can feel less like emptiness and more like space. Nothing profound. Just real.

This space was never meant to move quickly. It was meant to grow slowly, honestly, and with room for pauses — especially the necessary ones.

So this is me reopening the door, gently.

More words will come. For now, I’m here.

Thank you for being here too. šŸ’œ

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