Tag: Chronic pain

Field Notes: The Math Ain’t Mathing

Why the numbers never add up — and honestly, I’d like to speak to management.

There is regular math……and then there is chronic illness math.

They are not the same.

Not even a little bit.

Because according to normal human math:

Eight hours of sleep should equal feeling rested.

One small errand should equal a normal functioning day.

A quiet weekend should equal restored energy.

And yet.

My body routinely looks at these perfectly reasonable equations and says:

“Absolutely not.”

➕ The Math That Never Maths

Chronic illness math looks more like this:

8 hours of sleep = still tired

One appointment = full system reboot required

“I feel pretty good today” = mysterious consequences tomorrow

Cold weather = muscles immediately filing formal complaints

It’s less of a calculator situation…

…and more of a weather prediction crossed with interpretive dance.

Because as Annie Elise so perfectly puts it —the math ain’t mathing. 🤣

At this point I would just like someone — anyone — to explain it to me like I’m five.

🐶 Bingo Energy, Muffin Spirit (Revisited)

Spiritually, I am still very much:

✨ Bingo energy

🔥 Muffin spirit

Which means on the outside I am trying to be gentle and reasonable……but internally, when my body does something chaotic, there is a small Muffin voice going:

“EXCUSE ME???”

Especially when I’m tired.

Or cold.

Or — and this is very important —hungry.

🥄 Learning the New Math

The longer I live in this body, the more I’m learning:

This isn’t broken math.

It’s just… different math.

It’s a system where:

rest counts more than pushing

small wins count more than big plans

and listening to my body is more accurate than any calendar I’ve ever owned

Some days I still get frustrated.

Okay — many days.

But I’m slowly learning that working with my body instead of arguing with it tends to go… significantly better.

(Results may vary. Muffin still makes occasional appearances. Especially if I’m hangry)

🌱 Gentle Reminder

If your body’s math doesn’t make sense either…You are not doing it wrong.

You are not lazy.

You are not imagining things.

You are just living in a body that plays by different rules.

And honestly?

We’re doing pretty amazing considering the circumstances.

💛 Softly chaotic. Medically complicated. Still standing.

Phrase “the math ain’t mathing” lovingly borrowed from Annie Elise because… honestly… accurate.

When the Shoe Never Dropped

Part 11 — Learning to live without bracing for pain

Content note: post-surgical recovery, chronic pain history, grief, anger, medical trauma(non-graphic)

There’s a strange thing nobody tells you about finally getting help.

Sometimes the hardest part isn’t the pain.

It’s the silence after.

Waiting for the Other Shoe to Drop

The first couple days after surgery, I kept waiting for the moment where the real pain would show up.

Because it had to, right?

A major operation doesn’t just feel like a mild inconvenience. There was no way this was going to be easier than the pain I lived with before. No way.

So I waited for the “shoe to drop.”I waited for the moment where my body would remind me that healing still hurts. That I didn’t get to escape pain that easily.

But that moment never came.

Never.

🔥 The Weirdest Part? The Shots Were Worse

There was soreness, sure. Tenderness. A body trying to recover.

But the thing that irritated me the most during recovery wasn’t the surgery at all.

It was the daily blood thinning shot I had to give myself.

Those little injections annoyed me far more than anything happening at my surgical site. And that realization stopped me in my tracks.

If that was the thing pushing me toward grumpiness, then it meant something profound: my baseline for pain had been so high for so long that even post-surgical healing felt gentler than the life I’d been living before.

The closest I came to an “oh fuck this hurts” moment was… honestly kind of ridiculous.

I sneezed.

While sitting on the toilet.

With absolutely no way to brace my abdomen.

That one was HORRIBLE.

For a split second, I was convinced I’d popped a stitch. I yelled for my wife (then girlfriend), panicking, and had her check to make sure I wasn’t bleeding.

Everything was fine — but the fact that that was the worst moment?

That’s when a quiet realization began to settle in:

If this was the worst of it…then what I had been living with before was truly unimaginable.

🌊 The Shock of “Better”

I kept getting reminded to take my pain meds.

Not because I was being brave.

But because I just… didn’t feel desperate for them.

My wife looked at me at one point and said something I’ll never forget:

“You just had major surgery. You should be feeling worse than this.”

And she wasn’t wrong.

She was shocked.

But I wasn’t.

Because the truth was… post-surgery pain wasn’t even half of what I’d been living with.

And that thought didn’t just bring relief.

It cracked open something deeper.

🖤 Grief Isn’t Always Sad

The grief didn’t come all at once.

It didn’t show up as a dramatic breakdown or a movie moment.

It showed up as anger.

Lots of anger.

I was angry because I was right.

I was angry because the hysterectomy did give me my life back.

I was angry at all the doctors who dismissed me, minimized me, and made me feel like I was just weak or dramatic or “too sensitive.”

I was angry at the procedures I was pushed into — the ones that were supposed to help, but only made my case more complex.

And I was angry at my body.

Angry that I didn’t have a “normal” body.

Even after surgery, my body is still complicated. I still have fibromyalgia. I still have arthritis. I still have pain.

But I was angry that my body turned against me for so long in a way that stole entire years of my life.

And then there was the grief that surprised me most.

I never really wanted children.

But I still grieved that the choice was taken away — not by preference, not by timing… but by survival.

By necessity.

It was the option being gone that hurt, even more than the option itself.

🌱 Learning to Live Without Bracing

The truth is… I didn’t know how to exist without pain being the loudest voice in the room.

For so long, my entire life was built around survival:

managing symptoms

preparing for the next flare

fighting to be believed

holding myself together in public

collapsing in private

Pain wasn’t just something I experienced.

It became part of my personality.

My schedule.

My nervous system.

My identity.

So when it finally got quieter, it wasn’t instantly peaceful.

It was unfamiliar.

It was disorienting.

It was like my body didn’t know what to do with a life that didn’t revolve around suffering.

I kept waiting for punishment.

I kept waiting for the other shoe.

But it never dropped.

And slowly, the quiet started to feel like something else:

A beginning.

Adenomyosis: The Pain I Carried for 24 Years

When Love Helped Me Try Again for Answers

PART 8 — The First Time Someone Believed Me More Than the Doctors Did

After the ablation failed, after hormones became shackles, and after years of being dismissed, doubted, ignored, or blamed, something inside me went quiet. Hope wasn’t inspiring — it was dangerous. Every appointment was another chance to be humiliated, so survival became my default.

I didn’t expect relief anymore.

I expected disappointment.

And then someone found me — not in a clinic, but online.

🌿 A Friendship That Didn’t Flinch

We became friends fast — the kind of fast that feels like your soul recognizes someone before your brain catches up.

For the first time in my life, I didn’t hide my pain.

I didn’t wait until I trusted her. I didn’t ease her in gently. I didn’t soften the truth.

I told her everything.

The bleeding, the clots, the ER trips, the surgeries, the pain that became its own language, the doctors who turned my suffering into a character flaw.

I braced for the silence. The excuses. The slow disappearing act.

But instead, she stayed.

Not because she didn’t understand —but because she did.

💬 The Question That Changed Everything

Two months later, before we ever met in person, we were already a couple.

By then, she knew my entire medical history, and instead of recoiling, she asked a question no medical professional ever had:

“Why hasn’t anyone helped you?”

Not Are you sure it’s that bad?

Not Everyone has cramps.

Not Have you tried losing weight?

Just—

Why hasn’t anyone helped you.

As if the failure wasn’t me—but the system.

That question made something flicker inside me, something I thought I’d buried forever:

The belief that my pain mattered.

🌱 When We Finally Met

A month later, we met face-to-face.

She noticed how carefully I sat, how slow I moved, how my body guarded itself — and instead of ignoring it, she said:

“You shouldn’t have to live like this.”

No one had ever said that to me. Not even doctors.

🔻 When Intimacy Came With a Price

She was my first sexual partner.

Not because I didn’t want connection — but because no one before her ever made me feel safe enough to be seen.

I wasn’t afraid of sex.

I was afraid that if someone got close enough, they’d see the truth:

That I was exhausted.

That I was hurting.

That I wasn’t strong all the time.

That my body wasn’t reliable.

That I was “too much.”

For years, I assumed I’d die without knowing what intimacy felt like — not because I was unlovable, but because I didn’t think anyone would think I was worth the cost.

But she didn’t see a burden.

She saw a person.

Sex didn’t hurt during.

It hurt after — brutally, predictably, viciously.

Within minutes, I’d be hunched forward, tears escaping before I could stop them, my body convulsing with pain that made breathing feel optional.

And every time, she was right behind me — arms around me, steady and present, whispering:

“No intimacy is worth watching you suffer like this.”

She meant it.

She would have given up sex entirely to spare me pain.

But I wouldn’t let adenomyosis take one more thing from me:

It had already stolen my teens, my twenties, my hobbies, my trust in doctors, my belief in my own body.

I refused to let it take intimacy with the person who finally saw me — all of me — and stayed.

We weren’t fighting each other.

We were fighting the disease.

Together.

🔍 The Moment Support Became Strategy

We lived in different states, so she couldn’t physically go with me to appointments — but that didn’t stop her from showing up in every way that mattered.

She researched clinics the way some people research escape routes.

She combed through doctor reviews, credentials, specialties, malpractice histories, patient outcomes — details the medical system expected me to navigate alone, while in pain.

One night, after hours of comparing clinics, she sent me a message:

“We should try this place.”

Not you should.

Not maybe give this a shot.

Not have you tried

We.

Presence isn’t geography.

She wasn’t in my state, but she was in this fight.

The morning of the appointment, we texted like we were in the same room. My heart was pounding, my hands were shaking, and everything in me screamed that hope wasn’t safe.

Right before I walked in, my phone buzzed:

“You’ve survived worse than disappointment. Go see what happens.”

When I came out, trembling because — for once — someone in scrubs actually listened, she was the first person I messaged.

🛑 The Word That Changed Everything

She didn’t push.

She didn’t demand.

She didn’t say be strong.

She said:

“When you’re ready, I’ll go with you.”

But the truth was:

She already was.

💛 Looking Back Now

If the medical system had believed me, this chapter wouldn’t exist.

But it didn’t.

She did.

She didn’t cure my disease.

She did something harder:

She made me believe I deserved help.

Her belief didn’t make adenomyosis disappear —but it made me willing to fight again.

And that fight led me to the doctor who finally listened.

But that’s Part 9…

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